tag:blogger.com,1999:blog-31461418.post2050839713867402269..comments2023-09-07T20:24:11.937-04:00Comments on Ryn Tale's Book of Days:: LividKathrynhttp://www.blogger.com/profile/16388107764837538301noreply@blogger.comBlogger10125tag:blogger.com,1999:blog-31461418.post-90396027602853951082014-02-07T16:34:32.991-05:002014-02-07T16:34:32.991-05:00As for the negative pressure wound healing several...As for the negative pressure wound healing several systems are available on the market in Europe these are - Vivano from Hartmann here You have a link to the presentation in English http://www.youtube.com/watch?v=WCJs168IDLo and RENASYS from Smith&Nephew http://www.youtube.com/watch?v=1BGmElljZA0 We have sucessfully used Vivavo for treating a nasty wound my father-in-law suffered from. If I can be of any help please write aharper@wp.plAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-31461418.post-9987565632276766892014-01-31T07:48:16.343-05:002014-01-31T07:48:16.343-05:00Dear Anon,
THANK YOU so much for this information...Dear Anon,<br /><br />THANK YOU so much for this information! Her pressure sores did NOT heal for 18 or more MONTHS!! ugh. we are only revisiting botox and serial casting now with a new doctor. So your timing is phenomenal. Thank you so much. I had never heard of these solutions so this is very, very helpful.<br />KathrynKathrynhttps://www.blogger.com/profile/16388107764837538301noreply@blogger.comtag:blogger.com,1999:blog-31461418.post-35279888937831207372014-01-30T17:04:58.395-05:002014-01-30T17:04:58.395-05:00Hi, I hope the problem of pressure sores is now a ...Hi, I hope the problem of pressure sores is now a history for Your beautiful daughter. Just for the interest of others: I found padding of this area very difficult, but a firm sponge (like the one for dish-washing) if You cut a cone shape hole for the ankle bone does the trick very nicely. I also heartily recommend negative pressure wound healin if you fight with a pressure sore that is difficult to treat - vacutherapy works wonders!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-31461418.post-82663368381101349762010-09-22T10:01:06.762-04:002010-09-22T10:01:06.762-04:00Kathryn, so sorry for you and Ellie and this.
Not ...Kathryn, so sorry for you and Ellie and this.<br />Not your fault, fault of the stupido doctors.<br />Have you shown them this post? You MUST.<br />They have to know the consequences of their actions.<br />Prayers for a speedy healing.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-31461418.post-45871380904206826602010-09-17T00:15:55.404-04:002010-09-17T00:15:55.404-04:00I'm so sorry this happened. I'm also grate...I'm so sorry this happened. I'm also grateful to you for sharing your wisdome. So many parents benefit from your journey.Katyhttps://www.blogger.com/profile/02189007616883663434noreply@blogger.comtag:blogger.com,1999:blog-31461418.post-42026164888626139532010-09-15T13:29:53.217-04:002010-09-15T13:29:53.217-04:00oh I hate this sort of thing - when this happens t...oh I hate this sort of thing - when this happens to BB, I just can't help calculating the lifelong cost, and it makes me so . . . ugh, try and try . . . and then think of all the kids getting even more problematic medical care than these kids of ours, terrible.catherine (fairchild) calhounhttps://www.blogger.com/profile/08956302792185482511noreply@blogger.comtag:blogger.com,1999:blog-31461418.post-70034275237040501222010-09-15T04:51:47.070-04:002010-09-15T04:51:47.070-04:00Let me do some more research on pressure sores dar...Let me do some more research on pressure sores darling and email me or chat me more about it. I do know a "little bit" ;-) about wound healing, I'm sorry my own life's been this crazy that I didn't notice you alls were having a problem with this. love ya, as always. xPeypeyohhttps://www.blogger.com/profile/01805440436005587077noreply@blogger.comtag:blogger.com,1999:blog-31461418.post-82649624910105777072010-09-14T21:34:55.005-04:002010-09-14T21:34:55.005-04:00Wilke63 - Thank you. ;-)
Barbara, They didn&#...Wilke63 - Thank you. ;-)<br /><br /><br />Barbara, They didn't offer to do the Malleoli blow out thing but I will ask them - that is really helpful! She does have AFO's but after the last pressure sore Dr. W. told us no standing until it's gone - well still not gone. And she uses a stander at school too but that was also nixed due to the sore. Very frustrating as all avenues seem to be closing. That is a good point on the HBOT. As we would be using it for wound healing in this case. Maybe they will cover it - wouldn't that be a nice thing! Dave got it covered when he used it to save his finger which he cut badly so maybe they will cover this. Thanks - very comforting indeed! ;-)Kathrynhttps://www.blogger.com/profile/16388107764837538301noreply@blogger.comtag:blogger.com,1999:blog-31461418.post-11968185225118497782010-09-14T21:09:37.869-04:002010-09-14T21:09:37.869-04:00So sorry, Kathryn. The pressure sore is rotten/aw...So sorry, Kathryn. The pressure sore is rotten/awful but let a few people give you some supportive strokes here. <br /><br />I esp. support #6 - or the idea of a 2nd opinion/fresh look from someone else. <br /><br />Options you might ask about...can she have a pair of (removeable) braces (as in AFOs)? Can those braces be "blown-out" over the pressure points (malleoli). (ie heated and pushed out) If the braces fit otherwise and the pressure is off (OFF) the 'sore' she should be able to wear them. Consider a standing program (for weight bearing) over use of gait trainer for a while. <br /><br />Please affirm that the HBOT is for wound healing and not brain healing - if that is what you meant. For wound healing, there could be insurance coverage. <br /><br />Sending comforting intent. <br />BarbaraAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-31461418.post-68159382750512225022010-09-14T17:44:34.589-04:002010-09-14T17:44:34.589-04:00Kathryn, you have strength, love, determination, d...Kathryn, you have strength, love, determination, devotion, unwavering commitment to what is in the best interest for ellie.<br />Because there are people who fail you and her in this journey you are on does not make you for one second "the worst parent in the world"..<br />It would be a parent who does not recognize situations, or turns a blind eye to them that their love and commitment is called into question.<br />NEVER doubt yourself...i love youwilken63noreply@blogger.com