tag:blogger.com,1999:blog-31461418.post7006785839430626813..comments2023-09-07T20:24:11.937-04:00Comments on Ryn Tale's Book of Days:: Musings, Solstice, and IceKathrynhttp://www.blogger.com/profile/16388107764837538301noreply@blogger.comBlogger3125tag:blogger.com,1999:blog-31461418.post-23989643060830100762009-01-20T00:21:00.000-05:002009-01-20T00:21:00.000-05:00Kathryn, I didn't know that about seizures and Ci...Kathryn, I didn't know that about seizures and Cisapride. Now I'm wondering if it may have been part of Susanna's seizure onset. Anyhow, she's off it now too and is doing ok without it. I am grateful we were able to take it for a time, though... it sure helped get us through the worst.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-31461418.post-32384679770325964552008-12-26T13:27:00.000-05:002008-12-26T13:27:00.000-05:00Hi MFA Mama, thanks for the support. Ellie is on M...Hi MFA Mama, thanks for the support. Ellie is on Myralax and I have often wondered if we would ever get to the point where it would be enough. I am sooo not open to putting her on antibiotic as motility enhancer - the doctor who suggested that should rethink because the long term consequences for the kid doing that are pretty bad. Sheesh. That is such short term thinking - I hate that. However, Ellie is still off the Cisipride - I really thought about your comment and have kept her off it. She has a cold and a cough - but constant runny nose so it's probably postnasal drip. I've had her lungs listened to twice and they are clear so...it looks like we are done with it! <BR/><BR/>You're so right about the Myralax though and not letting her get backed up. There are other things too like MSM which helps keep things moving and repairs tissues at the same time. Now that she will be off the Cisipride we can relax a little about scary drug complications and maybe see if she can get off the seizure meds. <BR/><BR/>I am glad you are able to help your youngest with just Myralax. Happy Holidays!Kathrynhttps://www.blogger.com/profile/16388107764837538301noreply@blogger.comtag:blogger.com,1999:blog-31461418.post-66796250774624900842008-12-23T00:28:00.000-05:002008-12-23T00:28:00.000-05:00If you can possibly get away without the Cisipride...If you can possibly get away without the Cisipride I think I would, if I were in your shoes. Reglan isn't much better (and has even been shown to cause depression and neurological damage, which Ellie certainly doesn't need!), but Cisipride is bad for the liver and can cause arrhythmias...ugh. Motility is a tough one to address. My youngest has problems with low motility and residuals, and you know what seems to have helped him the most? Miralax. It seems to help keep things "moving" for him (most of his vomiting would occur when he was "backed up"). Our GI docs have not offered us any drugs specifically for motility because they say the side effects outweigh the benefits, but said that if we did come to the point where something was necessary they might suggest erythromycin. Of course long-term antibiotic use isn't an idea I would be wild about, myself, but have you ever heard of that? It might not hurt to ask if you feel like motility is still a significant issue for Ellie.MFA Mamahttps://www.blogger.com/profile/11052734298141262385noreply@blogger.com