Ryn Tale's Book of Days:

It's been a minute since I wrote last and there has been lots of change.  After my last post Ellie had another surgery or two. The total...

Ellie between surgeries.  It's been an unexpected roller coaster of a 2023 so far. In November of 2022, 9 days after Ellie's 20th bi...

 The population has outgrown the infrastructure in the United States. What do I mean by that?  Quite simply, doctors predicted that the popu...

 Hi everyone, Ellie's new glasses As I write I can't help but wish health, safety, and happiness to all. It's been a hard time f...

 Hi Everyone, We are still here and all vaccinated with Moderna. Because of Ellie our whole household and her carers were all able to get va...

Hi Everyone, Checking in. We are ok - COVID-free so far. We are pretty much trying to shelter in place as it'd be bad if Ellie got th...

It's been roughly over a 2 months since we were in the ER on New Year's Eve wondering what the future would bring...wondering if ...

Ellie in the ED 12/31/18 Hi Everyone, I thought 2018 was a rough year. 2019 came in before the ball even dropped and decided it was g...

Hi Everyone, Ellie Prom 2018 Ellie turned 16 two weeks ago and I can hardly believe it. Because she is 16 we are thinking a lot about...

Ellie is working on driving her electronic wheelchair. We hope to get to bring it home this summer! 

Hi. Back from my surgery - new hip installed. Very unhappy to find out the technology did not include iron man type capabilities or even Wi...

Ellie practicing her sitting at PT Hi Everyone, It's been awhile. Where to start...Ellie is doing great. She's healthy, happy...

New Year's Eve 2015: Ellie and Mama and Serafina Hi Everyone, As usual I have been meaning to write for some time now.  Life has ...

DJ Ellie Hi Everyone, It's been awhile as it's been a hard year for us as a family. But that is the content for another post....

Ellie on her 13th Birthday, November 9 13 13 13! How do I tell you about 13? For the first time this year Ellie let us sing Hap...