I have been thinking about this lately. It's been less in my face because Ellie is in a GREAT school and we are surrounded by people who are in the special needs community. We are lucky for all of this. But I think sometimes about how we will immerse ourselves in life even more. We are still somewhat isolated outside of school. It's much better since school, but still. One of the keys to our freedom (freedom being defined by me as access to community and all it has to offer) is Assistive Technology. We received a grant from the Gasperini Fund for some Assistive Technology but have not spent it yet because we are not sure what to buy.
It's hard because Ellie has motor disability. Her fine motor, is ok, very ok in that she can use her hands at all. She can operate her toys and her Weemote. She is having some success using my iPhone to swipe through pictures. The "tap" the screen part is more difficult, but I have not set my own phone to the accessibility settings yet. I am overwhelmed by all of this sometimes and frustrated. There is a huge smart board at Ellie's school - but she only gets to use it an hour per week. What I love about the iPhone is that we can instantly take pictures or videos of people and things that are meaningful to Ellie and use them to communicate and play.
Yesterday, Claire, left a comment on this post telling me about this app for the iPhone/iPod.
Thanks to Yumi for inventing it. It is always disgusting to me and outright wrong how much the companies who make "assistive tech" charge. I have heard the argument that they have to charge more because there is such low demand. I think that argument is a lie. To have to pay $65 for one switch that probably costs the company $1.50 to make is price gauging at its worst. I appreciate the high tech environment and the freeware movement especially.
The problem in our life is NOT that Ellie has a disability, it's the lack of access. It truly is. A very smart Professor at the school I am working at now has termed this the "Social Model" of Disability.
Thank you Claire!! You have reminded me how much I love my blog readers and other bloggers and the access to the world of parents in my same situation struggling to figure out the same problems.
I am going to upload it and give it a try. Why, oh why does the iPod NOT have a cameral and video? I will hate it if the answer is pure marketing that has to do with ATT and not making a profit if people buy such an iPod instead of the iPhone and it's network.
Still the need to have to "tap" is a problem for Ellie. But for $29.99 I am ok with giving it a try and being Ellie's "remote" to help her do it. I am looking forward to the day when Ellie, using voice output or some other means can more easily tell me what's on her mind. She has been expressing herself so much more in the last 6 months. It's incredible and one of those corners she turns when we least expect it. Happy days.
