Anyway, she is in for the night with Dada and will get the new MRI in the morning under slight sedation without intubation - which is a big improvement and sans radiation. It's still not clear if this is an abdominal migraine, regular migraine, brain deep seizure that doesn't show up physically nor in any EEG, acid build up or a malfunctioning shunt. 6 hours into our ER visit, Ellie spiked a fever.
There it is. I am home tonight alone in a quiet house, running Ellie's vomit covered clothes through the wash and cleaning up from the morning refuse. Putting her morning cereal bowl into the dishwasher feels a bit surreal. It's weird to be here at home, alone without the people who matter most. It's survival. Dave and I trade off sleep all the time, but it's weird, in a weird just not right kinda way.
Other than that, I am too tired/meh/raw/numb/notsurewhat to proffer more than the facts.
5 comments:
I'm thinking of you all Kathryn and hoping that those caring for Ellie are receptive to your concerns and figure all this out soon. Love, Emma xx
Kathryn
thinking of you. I hope some answers are discovered tomorrow, but you know, the answers with quick easy solutions.
J
I had an overwhelming urge to check on you this morning! I will keep Ellie in my thoughts -- and know even though I've been an absent blogger/commenter my friends from the blogging world are never far from my thoughts!
Keeping Ellie and you in my thoughts.
I'm sorry to read this. I hope tomorrow everithing is better.
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