After 2 great days at school, Ellie is down for the count again. She was having her dinner and very suddenly went into pain. She was rubbing the back of her head and in fact the whole right side of her head and started to cry. Then she wanted just to bury her face in Marla's shoulder (Marla is a PCA extrodinaire). Then Ellie spiked a fever of 101.1. After a dose of Tylenol the fever went down to 99.7 but she was still in pain. After 2 hours I gave her some Motrin as well. I gave her some homeopathic stuff to no avail inbetween. Right now she is sitting in a darkened room alternating between crying out in pain and trying to rest. She hasn't vomited up her dinner.
This is hard, for the record, very hard. Hard to see her in pain. Hard because Tylenol and Motrin seem to have no effect. Hard because she was doing so very well and having such a great day. Hard because it looks like she will miss out on a very cool field trip to a 4D version of the Polar Express. Hard because when she screams it drives out all other thoughts from my brain.
Hard because she has experienced so much physical pain in her life already. Who do we call "uncle" to? Who? I am calling, "uncle, uncle, uncle!"
Migraines Suck.
5 comments:
Migraines DO suck and I'm wondering if anyone has suggested keeping a journal to see if she has any triggers. My husband once had a combo of red wine and chocolate that left him incapacitated for two days straight. He's not gone there again and also avoids certain protein shakes and white chocolate for these very same reason.
I'm so sorry. I know it's hard when you're baby's in pain.
poor sweet ellie...poor sweet mom. i hope they can come up with something that will help these sudden migraines. is she too young for meds like imitrex?
i hope these migraines are soon a thing of the past.
Hi Katy - I am keeping track of that or trying to. Because Ellie is tube fed it's really easy to track her intake - which does not include cheese, chocolate or red wine! ;-) But it is a good idea to track it for sure!!
Thanks to you both.
I'm so sorry to hear this. I hope she is healed from this terrible pain soon.
I am a migraine sufferer, have had them since the age of 4. NONE of the normal pain meds (Tylenol, Motrin, etc) do any good - EVER. Oh the poor dear. Can she take any of the current migraine drugs that actually make the migraine go away? They have worked miracles for me. I use Imitrex in the nasal spray form (the pill form only adds to my nausea).
I also have what a friend so aptly coined as "migraine hangover." Once the migraine is gone there is still a recovery period of lethargy and loss of appetite. Sounds like Ellie has that too.
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