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Sunday, January 10, 2010

Nothing Left to Bolus

In my last post, I worried that I was reporting too soon, commenting on an anomaly or a shooting star. I am happy to report that is not the case! Ellie is eating! It's official and I hope it stays that way. AND she hasn't had any migraines in 2 weeks. This is a big improvement after her getting them every couple of days. It makes me think we are right about those headaches being part of the withdrawal from Protonix and Depakote.

But back to eating.

She eats. She eats a lot and with enthusiasm. She has been eating so much I don't have anything left to bolus. Woot! And she has been eating more. Whenever Dave and I eat around her - which may not always sync up with her meal time, she will eat too. She eats pureed versions of what we are eating or some applesauce or something like that - kid food. The fact that she eats so much more and usually whenever it is offered makes me think she must have been terribly hungry over the past few years. Sigh. :(

Still, she is eating now and it's a wonderful thing to get to feed her and see her eating. It's very cute and there is something that is soul deep satisfying for me as her mother being able to feed her by mouth and having her eat. Also, I noticed that she has less reflux - no kidding, right?!

Video to follow.

13 comments:

Billie said...

Oh...sigh. This just makes me feel all warm and fuzzy. Thanks and keep it up Ellie!!!!!!

Candace said...

FREAKIN' awesome, Kathryn! Keep us updated on the progress. Those of us whose kiddos aren't are livin' vicariously thru Elli!WOOOOOOOO HOOOOO

MFA Mama said...

Okay so I'm getting married tomorrow and forgot that I'm not alone in the house when the kids are with their dad and just whooped like a crazy person and my fiance was like "um...?" and I had to explain, like a dork, that my friend-inside-the-computer's kid was OMG EATING and he looked at me like I had two heads until I explained. Then he just looked at me like I probably look at him when he tries to talk to me about WoW or something :) But that is SO FREAKING AWESOME! I've had a kid start eating after being g-tube dependent and YES to the soul-satisfying-ness of actually getting to FEED them interactively and have them participate. It's SO gratifying when they actually WANT to eat and ENJOY it after a period of not-eating and oral-aversion and I am SO pleased for you and Dave (and of course Ellie!) that the eating has continued! And yeah funny how reflux improves when there's actual swallowing getting the peristalsis going...GO ELLIE GO!!!

Kathryn said...

Billie- I am glad about that - I have gotten so much hope from watching your little ones grow and thrive - so I owed you! ;-)

Hi Candace - thanks I will! The eating thing is a long road and just because she is eating now doesn't mean she will keep eating but one has to hope right? AND keep trying! WE have the best support team at Ellie's school and they made food fun again for Ellie.

MFA Mama! Congratulations on your wedding!!! And thanks for the support - I think I heard you over the ethers! video soon to follow. I hope you have a GREAT day tomorrow!!! Pictures please!

Cheryl said...

YAY!

I am including your last post in this month's carnival b/c the theme is holidays and it is a GREAT new years post!

Here's to EATING IN 2010!

PS we need a host for next month...

Kathryn said...

Cheryl - thanks! I will host next month -I haven't done it in ages. Would be happy to.

Cheryl said...

Just let Penny know

Anonymous said...

that's awesome!! so awesome! keep it up!!

Anonymous said...

I am so glad that Ellie is eating! I'm sure that you read this in all your research, but periactin is often used as an appetite stimulant in children with eating aversions. Perhaps you have gotten rid of the migraines and the eating troubles all at once. So exciting!

Anonymous said...

Go Ellie! You have the most tenacious, and certainly the best, mama and dada in the world. Kathryn this is the best news, you made me cry :) Love Aunty Rie xxx

BusyLizzyMom said...

Glad to hear she is keeping it up. You must be beaming at the table with her.
It is HUGE that she is eating and enjoying it.
Go Ellie.

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therextras said...

"soul deep satisfying" Indeed!

Congrats to all!

Barbara